Vee’s SpoonieSpace.

Dear Pamilya,

As many of you know I have been battling chronic conditions for years, with COVID increasing my severity ten fold. I am now bedbound and barley functioning. This page is to share information regarding the treatment I get for MCAS, POTS, ME/CFS, EDS, and any other helpful information I find through experience. It is not comprehensive as I’m only posting the information I personally get from providers I see. There are so many amazing people who can share other resources including Dysautonomia International, EDS Society, Open Med Foundation, and MEACTION Network. Wishing all my fellow spoonies well. I am not a medical doctor, none of this is medical advice. Page is under construction.

MCAS Resources.

EDS Resources.

Dysautonomia Resources.

Other Resources.